This weekend the University Hospital of North Staffs open their doors to the 400 million pound hospital building and the first patients to move in are the respiratory patients!! So we've had a couple of banners done and we were planning just a quiet peaceful protest just to show the hospital board that we are not going away and are going to continue to fight for a CF Unit!
Seems that the hospital had also invited Midlands today down and they wanted the story to be about their new super hospital and the first patients walking in, but now the news want our story more!! Which is great for us!! Sad for the hospital! But hey they shouldn't of promised us a CF Unit for years and years and then taken it away from us without so much as a real explanation.
So Midlands Today sent a Camera Man and Reporter Lindsay Doyle have been to my house this morning and interviewed me and my partner in crime Chris Hall (CF parent) as the Campaign leaders and asked us why we need a CF Unit at the hospital!
I was really nervous in the interview, didn't know what to wear or anything, but like usual once my mouth opens the important stuff seems to roll off my tongue! Chris did really well explaining our need for a unit and all the hospital broken promises and mine interview was the cf perspective!
Today as a CF patient attending the hospital i've received a letter and i'm presuming all the other patients have too about the CF patients care been moved from ward 79 to the new ward 233. It states that we will have 4 side rooms which will be fitted with additional facilities to improve comfort whilst cf's are inpatients and two of these rooms will be ring fenced for CF patients. It goes on to say that the directorate team would like to apologise that this is not a dedicated unit that we were hoping for but assure us it will be a positive move for the CF service.
While all this sounds good and it's a damn site better that what we have been faced with previously on Ward 79 it a positive step and it's in the right direction and it just goes to show what we can get if we just fight for what we deserve! Back in June when we started this campaign the move to 233 was going to happen and adult CF patients hadn't really been a factor on their priority list, now since this campaign was launched, after many meetings that Chris and I have attended with Nicole and Stuart Sutton helping out too by attending meetings we have pushed for better facilities and quality of care things have started to change! They have held CF training days for the staff too, its just unfortunate that half our staff aren't guaranteed a job on our ward and will find out their fate in January next year as they will move with us on a temporary basis.
So we just keep fighting and we will get there, tomorrow the hospital hopefully will realize how serious we are about this campaign and if we have a good turn out of people to help us with our banners they'll realize there new super hospital ain't so super without a dedicated CF Unit for the super duper CF patients!!
The Midlands today TV interviews will be on the lunch time show! 12.10pm and the follow up in the evening at 5.45pm for the protest at the hospital. Please watch us!! I will be watching myself under a pillow i think!! lol x
Chris and I will also be on Radio Stoke at 8am tomorrow morning (Saturday 5th November) 94.6FM
So tomorrow's a big day!! Lets hope its a success!!
For more information on our campaign visit http://cfunit.moonfruit.com/